tag:blogger.com,1999:blog-3924274367011072486.post2380795997706844157..comments2024-03-09T00:20:30.899-08:00Comments on My brain cancer story: PatienceAndrew Scarboroughhttp://www.blogger.com/profile/00008644346839224930noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-3924274367011072486.post-70558912730004150322016-05-02T20:23:32.653-07:002016-05-02T20:23:32.653-07:00Thanks you for sharing this. I struggle with patie...Thanks you for sharing this. I struggle with patience also. It has always bothered me that I feel that they technician understands the results but can not give them to you. I wish I could just read their minds. They are so coy about it too. But it always makes me feel like something is for sure wrong with me.<br /><br /><a href="http://glendalemri.weebly.com/glendale-mri-institute/better-mri-imaging-for-better-health" rel="nofollow">Kacey @ Glendale MRI</a>Kaceyhttps://www.blogger.com/profile/00352506468130162041noreply@blogger.comtag:blogger.com,1999:blog-3924274367011072486.post-5598222547588567152016-05-02T20:22:12.784-07:002016-05-02T20:22:12.784-07:00This comment has been removed by the author.Kaceyhttps://www.blogger.com/profile/00352506468130162041noreply@blogger.comtag:blogger.com,1999:blog-3924274367011072486.post-54091734819598774062016-02-29T04:07:07.309-08:002016-02-29T04:07:07.309-08:00Thank you! I struggle to figure out how to best su...Thank you! I struggle to figure out how to best support him. I do the best I can, as he does too. I really do appreciate the responses. Aubreyhttps://www.blogger.com/profile/15016460578373492968noreply@blogger.comtag:blogger.com,1999:blog-3924274367011072486.post-32953365213715716032016-02-27T09:28:12.118-08:002016-02-27T09:28:12.118-08:00I was on a lot more than that and struggling with ...I was on a lot more than that and struggling with the seizures so hopefully he can find something that works to better manage the seizures with the medication. It's really tricky but if the disease remains stable you can experiment a bit more. I have found that magnesium and DHA is great for managing epilepsy. Being off medication means I have to be very precise with this but the extra protection of the medication may be useful for providing comfort if he wants to experiment with this. <br /><br />I understand his state of mind, I became very depressed and actually wanted to give up on many occasions. Support from family and friends pulled me through during very dark times. I don't talk about that much but it got quite serious at one point. Andrew Scarboroughhttps://www.blogger.com/profile/00008644346839224930noreply@blogger.comtag:blogger.com,1999:blog-3924274367011072486.post-38502642578189662572016-02-27T09:20:41.421-08:002016-02-27T09:20:41.421-08:00He is currently on both 1500mg Keppra BID and not ...He is currently on both 1500mg Keppra BID and not up to full dose of lamictal yet, 100 mg BID. He seems to be tolerating them well, though his seizures continue to get worse. He is currently at around 8 partials per day that last about a minute, and cause twitching in his leg and travel to his arm. We have recently contacted a nutritionist and will begin working with their company. Hoping it helps. Your story certainly is inspiring. I've been trying to get my husband to read your blog or listen to your interviews. He finds reading about his condition depressing. Hope he relents and sees how inspiring it is to read about survivors! Thanks again!Aubreyhttps://www.blogger.com/profile/15016460578373492968noreply@blogger.comtag:blogger.com,1999:blog-3924274367011072486.post-15258634595590270792016-02-21T07:38:09.264-08:002016-02-21T07:38:09.264-08:00Yes, I'm certainly not a fan of Keppra! I unde...Yes, I'm certainly not a fan of Keppra! I understand that Lamotrigine is less sedating. How is he finding this? I am relieved to be completely off medication although mainting trace element homeostasis and balancing the electrolytes is a tricky method to apply at times. For me personally it is worth it as the side effects for me were debilitating on such high doses of both Keppra and Epilim. Andrew Scarboroughhttps://www.blogger.com/profile/00008644346839224930noreply@blogger.comtag:blogger.com,1999:blog-3924274367011072486.post-44999420117950729992016-02-20T06:06:35.191-08:002016-02-20T06:06:35.191-08:00Very interesting. My husband has been on Keppra si...Very interesting. My husband has been on Keppra since the grand mal seizure that alerted us of his tumor and lamotrigine was added slowly when Keppra failed to control his partial seizures. Aubreyhttps://www.blogger.com/profile/15016460578373492968noreply@blogger.comtag:blogger.com,1999:blog-3924274367011072486.post-17399843637336821792016-02-20T06:04:38.764-08:002016-02-20T06:04:38.764-08:00This comment has been removed by the author.Aubreyhttps://www.blogger.com/profile/15016460578373492968noreply@blogger.com