I never thought this would be possible when I look back at where I've come, suffering those horrible grand mal seizures and now being on no medication with complete seizure control.
Never forget that our brains are made of fat and cholesterol. As I have written on several occasions, in and around malignant brain tumours we see dysregulated lipid composition when compared to healthy, disease free brains. This is often how neurosurgeons actually identify tumour tissue for resection, as described from the study below and from use of the iKnife, which identifies malignant tissue and can be combined with a form of photodynamic therapy.
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| Photodynamic therapy- 5-ALA: http://www.cam.ac.uk/research/news/glow-in-the-dark-brains-aid-tumour-surgery |
Epilepsy and neurodegerative diseases can all me managed more effectively with manipulation of dietary fatty acids. I believe this has been an essential part of my strategy to manage my disease and the epilepsy I have acquired as a result. I have been fine-tuning this approach over time and I have regular blood tests to monitor the efficacy of this approach. I wrote about this in more detail in my post on fatty acids and brain tumours which can be found here: http://mybraincancerstory.blogspot.co.uk/2016/07/fatty-acids-and-brain-tumours.html
you are an inspiration for many people..
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I have been following you your story for some time now and I have had many of the same struggles as you. Oligoastrocytoma diagnosed at 27, two craniotomy, grand mals, epilepsy and am shortly moving into radiation and chemo as there was growth discovered six months ago. Since I was told about my recurrence I started searching for any valid scientific evidence that I could find that might improve the outcome of my situation and came up with the ketogenic diet(dairy free) life style. There has been no growth of my tumour since I switched to keto and I hope that keeping to the diet and fasting regularly will limit the side effects of radiation. You keep me hopeful though that I may be tumor free, seizure free and medication free one day as well. Thanks for sharing.
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Hello my son is 8 years old and had is first seizure at 2 years he was diagnosed with generalized epilepsy at 5 years old has been on medication since until doctor got him off and on he broke out on a seizure lasting almost 10 minutes he was put back on medication and the meds even increased ever since were back to his moody ness, tantrums, waking up every morning struggling and at night when asleep his body is constantly twitching mostly from his upper body, he had another big seizure and were still at it with all these moods. we tried different meds nothing was really working. I never stopped battling it, I’m open and supportive when looking at alternative and procedures. I saw someone comment on a website. Her daughter had seizure and she used a herbal medicine for her daughter seizure and she was seizure free. I’m glad that it was possible. I was ready to try anything that we help my son, i had a conversation with the Dr . I decided try the herbal medicine, I purchased the medicine. my son started taking the medicine. I was shocked to see my son improve, he stop having seizures. his more active and no more seizure. I’m so happy to see my son seizure free. Do as much google research as you can and do not give up on trying. If there is improvement continue, if there is no improvement stop and try something else Everyone is different. thank God my son is seizure free. you can email him on dr.lewisamenico@yahoo.com
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