I've been asleep for most of today after suffering with vertigo alongside terrible fatigue this morning. I am now starting to feel less dizzy but I have significant heat and pain where my craniotomy scar is.
My headaches are being controlled relatively well with regular paracetamol which is encouraging. I'm still concerned however because something definitely doesn't feel right and I'm in a lot of discomfort. I'll just have to sit tight and wait until Wednesday!
Anonymous response from another brain tumour patient about my situation with the MRI scan-
'Apparently only a treating consultant can order an MRI - I've had the same problem which is partly why I don't live in the UK anymore. Everyone goes on about how wonderful the NHS is, but I'd be dead by now if I wasn't so pushy. Do you have someone watching you at home? I would bombard your oncologist and neurologist's secretary with calls monday and till they're on it. failing that, back to a&e :( - good luck.'